Unfortunately though, Ben hasn't had the easiest start to life. Born twelve weeks early and with Chronic Lung Disease, he is dependant on long term oxygen. Despite various other health problems including Periventricular Leukomalacia (brain damage), Cerebral Palsy and visual impairment, this cheeky chap is almost always smiling. Tube fed, Ben is due to have surgery for his P.E.G and Fundoplication later this month at Manchester Children's Hospital.
Understandably Ben has had many ups and downs these last few months and yet he remains a little fighter! So now comes the part when I ask for a helping hand from you guys. You knew that was coming right? :)
We are fundraising for a Specialised Orthotic seating system known as a P Pod, so that Ben can sit safely and comfortably at home whilst getting the postural support he needs. Although the NHS do their best by people, their funds are currently stretched to the limit and as such they're unable to provide this seating aid for Ben.
If you wish to help us raise the £1000 needed, please visit Nicola's 'JustGiving' page by clicking here. Every little really does help. Thanks in advance and I hope to update you all on Ben's progress in the near future.
Lots of Love Justine xxx
Hi Justine, Ben is so beautiful! Thanks for sharing you and your family are the bomb, stay strong and my prayers goes out to you and your fam:)
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www.theclosetelf.com
He's come out of hospital this week and is doing quite well. Thanks for your kind words, Nicola appreciates them all! xx
DeleteAwww Justine, this is heartbreaking - as soon as I get paid tomorrow I will be donating, thank you for sharing this! Donating is the least I can do. - Tasha
ReplyDeleteI know hun but he's a little fighter. And thankyou. Every little helps. Ben has just come out of hospital this week after his op and is doing quite well xx
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